Patient information leaflets produced by other organisations on various aspects of genetics and links to websites where leaflets are available:
ScotGEN
The Scottish Genetics Education Network (ScotGEN) is a network for all individuals involved in teaching genetics for healthcare in Scotland. ScotGEN was established in 2005 as a collaboration of the 4 Scottish Clinical Genetics Centres with Scottish Universities.
Macmillan
Link to the website of Macmillan and their information about cancer support.
Cystic Fibrosis Trust
Link to the website of the Cystic Fibrosis Trust. A number of leaflets are free to download including ‘Genetics‘ which covers topics on inheritance, carrier testing, tests during pregnancy and for newborn babies.
Unique: Rare Chromosome Disorder Support Group
Link to the website of Unique which gives a basic understanding of chromosomes and rare chromosome disorders.
British Society for Human Genetics
Link to the website of the British Society for Human Genetics. A variety of leaflets produced by members of the society are free to download on aspects of genetics, genetic conditions and genetics services.
