Cystic Fibrosis Clinics – Cystic Fibrosis Adult Service

Outpatients Services

NHS NEAR ME
Your new virtual outpatient appointment system

Health worker sitting at workstation involved in online meeting — Virtual MDT Meeting on Microsoft Teams

NHS Near Me- Patient Information Leaflet

What is NHS Near Me?

NHS Near Me is an alternative way to provide outpatient appointments. It offers a way to consult with a patient by video either at their home or at local NHS premises using internet-based video consulting. Near Me is a secure form of video consulting approved for use by the Scottish Government and NHS Scotland.

What do I need to use NHS near me?

You need a device for making a video call such as a smartphone, laptop or tablet that is connected to the internet.

What happens at my next outpatient appointment?

You will receive a text message or appointment letter with your appointment date and time. This will include a link to your virtual appointment.

Please make sure we have your up-to-date mobile number.

What do I do on my appointment day?

Enter your appointment link into your browser 5 minutes before your scheduled appointment (You will be asked to enter your name, date of birth and telephone number)
Click on Start Call to access our CF waiting room
Make the call from somewhere quiet and private
Try to limit background noise (like children and pets)

Please note NHS Near Me appointments are strictly by appointment only. Please contact the CF Nurses on Tel- (0131) 537 1762 if you require an urgent assessment.

Example of NHS Near Me appointment. Please click here for a short video example –> NHS Near Me

For further information please visit the NHS Near Me dedicated website on the following link: https://www.nearme.scot/

CF Clinics – Each week the team run 2-3 CF clinics in Edinburgh and 1 CF Clinic in Dundee with full CF Team input and review.
CF Annual Reviews – Annual review tests performed on clinic days.
3 Monthly CF Diabetic Clinics – Run jointly with a specialist diabetes consultant and diabetic nurse specialist in addition to the CF team.
3 Monthly Transplant Clinics – Review clinics are run by the Cardiopulmonary Transplant team at the Freeman Hospital, Newcastle. (This clinic is located at the Western General Hospital, Edinburgh.)
3 Monthly CF Liver Disease Clinics – Review clinic run jointly with a consultant liver specialist.
Pregnancy/Obstetrics – Joint care of pregnancies with obstetrics. This includes the diabetes team when required, and is held in the metabolic unit, Western General Hospital.
Transition CF Clinics – Transition clinics are led by Dr Rodgers and run jointly with the Paediatric CF Team for patients transitioning to the CF Adult service. Clinics are located in both the Royal Hospital for Sick Children and Western General Hospital in Edinburgh.

We follow the CF Trust’s guidelines in relation to cross-infection for both inpatients and outpatients. At the CF clinic, patients are given a room for the duration of their visit which minimises contact with other CF patients and therefore reduces the risk of cross infection. You will be seen by all members of the team. All CF clinic appointments are made according to microbiology status – this means what grows in your sputum.

It is important that you come to the clinic appointment you have been given. If you miss a clinic appointment we may not be able to give you another appointment for up to 6 weeks. We would like your help in ensuring we review all patients appropriately.

Clinic Location

All clinics are held in Clinic A, 1st Floor, Main out-patient department of the out-patients building.

Clinic Times

Clinic times are 1.45pm & 3.30pm.

The new Monday CF clinic is held every Monday morning.

Clinic Tips

Bring your annual review feedback letter to your clinic appointment if you have received one.
If you arrive early for clinic, please do not come up to the clinic until your appointment time, as a room will not yet be allocated to you.
For Diabetic clinics only- please remember to bring your BM monitor (if you have one), your blood glucose diary and an early morning urine sample.

If you are unable to attend you appointment please call 0131 537 1762 at the earliest convenience to re-arrange your appointment.

Ward Attenders

In addition we review patients on the ward as ward attenders through prior arrangement. As a large Cystic Fibrosis service we will aim to see you as soon as possible, although this may not be the same day you call. When attending the ward for review we have to consider length of appointment needed, Doctor availability, cross infection and room availability.

Please help us by attending ward times as arranged and letting us know if you cannot make it or are running late. It is also important if you are originally booked for a short appointment (ie. blood test), and you are unwell and need a Doctor review, to let us know in advance so we can arrange a longer slot in our diary for you.

We appreciate your help in keeping your service running smoothly.