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Supporting Carers NHS Lothian | Our Services

Progressive Neurological Conditions

Simplified Summary

Support if you are caring for someone with a progressive neurological condition.

One man assisting another man who is in an electric wheelchair
Rebecca Lee Photography

A Carer Support Officer is now based at the Astley Ainslie Hospital, their role is to offer support across the Lothians to unpaid carers of people with progressive neurological conditions such as

  • Multiple Sclerosis
  • Huntington’s Disease
  • Multiple System Atrophy
  • Parkinson’s Disease

The support provided may include helping carers to access respite or breaks from care, or services that may help their physical, emotional and financial wellbeing.

The Carer Support Officer can offer information to carers about different types of support available from local authority and charitable organisations. 

This may include how to access an Adult Carer Support Plan from the council or signposting to your local carers centre.  Carers can access support from this service by directly contacting Kirsty Shaw (via the Edinburgh Carer Support Team) or being referred by another health and social care professional.

Contact:

Kirsty Shaw
Carer Support Officer for Progressive Neurological Conditions
Astley Ainslie Hospital
Edinburgh

Carer Support Team email: carer.support@nhslothian.scot.nhs.uk

Carer Support Team helpline: 0131 536 3371

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Email: loth.charity@nhs.scot

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