This research study is trying make it easier for people with Huntington’s disease to get care from different health professionals by using a multilingual e-health platform.  
The NDN, along with NHS Lothian Huntington’s service, are involved in recruitment to module 1 of the international HealthE-RND study. Module 1 involves creating a new tool to measure quality of life, and the effect of care and support on patients and their carers

What Happens In This Study?

You will complete questionnaires.

Can I Join This Study?

This study is set up as an Enroll-HD associated study, therefore you should already be participating in Enroll-HD.

To take part in this research study, you must also meet these 3 requirements:

1. Your Age: You are 18 years old, or older.
2. Your Permission: You must be able to understand what happens in the study and sign a form (called informed consent) to say you agree to join.
3. Your Time: You must do your best to complete all the questionnaires on time.

Study Length: 2 weeks

Number of appointments: 0 visits (you will be sent out two sets of questionnaires to complete)

More information on the trial can be found on the HealthE-RND website.