This research study is trying to speed up the development of treatments for Huntington’s disease by gathering data to better understand the disease’s progression.

What Happens In This Study?

You will take part in several physical and cognitive assessments, as well as a blood test to check the number of CAG repeats in your huntingtin gene. This happens for every participant, whether they know their gene status or not.

Can I Join This Study?

To take part in this medical trial, you must meet these 4 requirements:

1. Your Diagnosis: Both people with and without, either a diagnosis of HD OR carrying the HD gene mutation, can take part.  
2. Your Age: People of all ages are allowed to take part. Children under the age of 18 with a diagnosis of juvenile HD can participate in Enroll-HD with the consent of a parent or legal guardian.
3. Your Genes: You do not need to know your gene status.
4. Your Time: You must do your best to attend your study visits.

Study Length: Enroll-HD doesn’t have an end date. You’ll be asked to come back for a return visit once a year. You can leave the study at any time.

Number of appointments: 1 per year

More information on the trial can be found on the Enroll-HD website.