We are currently running a range of Huntington’s Disease research studies across Edinburgh and the Lothians. Some of our studies are also taking place in other parts of Scotland.
If you are interested in participating in research, you can register online or email us: loth.sdcrn@nhs.scot
By taking part, you can help advance understanding, improve treatments, and shape the future of dementia care.
Open to Recruitment

ENROLL-HD: A Prospective Registry Study in a Global Huntington’s Disease Cohort
A research study trying to speed up the development of treatments for Huntington’s disease.

iMark HD: Investigating biomarkers for disease and symptom progression in Huntington’s disease
A research study trying to better understand the early stages of Huntington’s disease, and how the disease progresses.
Upcoming Studies
We don’t have any studies coming up right now, but this changes all the time.
Sign up to our research register to be kept up to date with upcoming Huntington’s Disease research studies.
Other Ongoing Studies
Closed to recruitment

HealthE-RND: Advancing E-Health for Huntington’s Disease and Beyond
A research study trying to make it easier for people with Huntington’s disease to get care from different health professional.












