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Neuroprogressive and Dementia Network NHS Lothian | Our Services

PROSPECT-ExPRESS

The Early Assessment, Diagnosis and Treatment of Parkinson’s Plus Related Syndromes (ExPRESS)

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Project Details

Start Date
Late 2026

Status
Site in Setup

Principal Investigator
Gordon Duncan

NDN Study Lead
Bev Goldberg

Main Research Site
Royal Infirmary of Edinburgh

This research study aims to make it faster and more accurate to diagnose and predict how progressive supranuclear palsy, cortico-basal degeneration, multiple system atrophy and Parkinson’s disease may develop.

What Happens In This Study?

People in this study will have blood samples taken and complete questionnaires.

Can I Join This Study?

To take part in this medical trial, you must meet these 6 requirements:

  1. Your Diagnosis: You do not need to have a diagnosis to take part.
  2. Your Age: You are 18 years or older.
  3. Your Symptoms: You must have been seen at the hospital within the last year because of symptoms linked to Parkinson’s disease
  4. Your Study Partner: You must have a reliable friend of family member who knows you well and you see regularly, who can also take part to provide us with information on how you are doing.
  5. Your Permission: You must be able to understand what happens in the study and sign a form (called informed consent) to say you agree to join.
  6. Your Time: You must do your best to attend all your study visits, and follow the rules of the study until it ends.

Study Length: 48 months (4 years)

Number of appointments: 6 visits

More information on the trial can be found on the UCL Website.

Meet the Study Team

NDN Principal Investigator: Gordon Duncan

Consultant Physician & Lothian Clinical Lead

NDN Study Lead: Bev Goldberg

Clinical Studies Officer

To find out more about this research study, please contact:
loth.sdcrn@nhs.scot
0131 537 3804

Funding and Sponsors

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NIHR
MRC

CONTACT INFORMATION

Neuroprogressive & Dementia Research Network Office

Old Pharmacy Building
Western General Hospital
Edinburgh
EH4 2XU

Email: loth.sdcrn@nhs.scot

Telephone: 0131 537 3804

ABOUT US

The NRS Neuroprogressive Disease and Dementia Network team in NHS Lothian conduct commercial and investigator led studies for: Alzheimers disease, Parkinsons disease, Huntingtons disease, Motor Neurone Disease, dementia with Lewy bodies, Progressive Supranuclear Palsy and Multiple System Atrophy.

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