Referral
- Please see RefHelp for referral guidance for people with Parkinson’s
- Patients with suspected Parkinson’s Disease or related movement disorders are assessed and managed by Neurology or Medicine of the Elderly consultants depending upon age and frailty
- For any patients, particularly those aged under 65 years / biologically young or those with atypical movement disorders, refer to Neurology via SCI Gateway
- For patients aged over 65 years, there are specialist Parkinson’s clinics in each area of Lothian (Refer via Sci Gateway to your local Medicine of the Elderly service)
- The Neurology Movement Disorders Clinic is based at the Anne Rowling Regenerative Neurology Clinic at the Royal Infirmary of Edinburgh and run by Drs Richard Davenport and David Breen
- The Medicine of the Older Adult Parkinson’s Clinics are as follows:
WGH (North West Edinburgh): Dr Conor Maguire / Dr Elizabeth Keane
Leith CTC (North East Edinburgh): Dr Gordon Duncan
Liberton (South Edinburgh & MidLothian): Dr Sarah Marrinan / Dr Jo Renton
St John’s (West Lothian): Dr Maria Corretge
Roodlands (East Lothian): Dr Lewis Morrison - There is a Parkinson’s Disease Nurse Specialist team within NHS Lothian: Alison Stewart, Tina Daniels, Sharon Reading. Telephone advice line: 0131 465 9156 (answer phone)
Email: Parkinsons.nursespec@nhslothian.scot.nhs.uk
RefHelp links
Parkinsons (MoE) – RefHelp (nhslothian.scot)
Parkinson’s – RefHelp (nhslothian.scot)
Guidelines
- SIGN 113 – Diagnosis and pharmacological management of Parkinson’s disease
- NICE NG71 Guidelines – Parkinson’s disease in adults
- Management of patients with Parkinson’s disease who are nil by mouth or with a compromised swallow
Anticipatory Care Planning
There are some very useful resources created locally that can guide professionals on anticipatory care planning. This covers help with identifying patients where care planning might be relevant, and ways to improve discussions and communication around these issues.
- The SPICT-4ALL is a tool to identify patients who may benefit from anticipatory care planning, supportive, or palliative care. It uses plain language and avoids medical jargon for use with patients.
- Effective Communication for Healthcarerun workshops to help professionals improve their communications around deteriorating patients. They have developed the tool developed by Dr Andrew MacKay at St Triduana’s GP Practice to assist with anticipatory care planning in care homes. This is based around the three questions: “How would you like to be treated if …”
- “…you suddenly collapsed?”
- “…you had an infection that was not responding to antibiotics?”
- “…you were no longer able to eat and drink due to an illness?”
