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Neuroprogressive and Dementia Network NHS Lothian | Our Services

PD Frontline

PD Frontline (part of RAPSODI)

PD Frontline Logo

Project Details

Start Date
November 2020

Status
Open to Recruitment

Principal Investigator
Dr David Breen

NDN Study Lead
Jessica Crossan

Main Research Site
Western General Hospital

PD Frontline is a remote study that offers online genetic testing for individuals with Parkinson’s disease, allowing them to be referred to relevant clinical trials and research studies if they wish.

What Happens In This Study?

PD Frontline will send you a sample collection kit to provide blood and saliva samples. You will return these by post using a provided prepaid envelope. Your samples will be used for genetic testing, including the analysis of the GBA1 gene.

Can I Join This Study?

To take part in this research study, you must also meet these 3 requirements:

  1. Your Diagnosis: A doctor must have confirmed that you have Parkinson’s disease.
  2. Your Age: You are between 18 and 90 years old.
  3. Your Permission: You must be able to understand what happens in the study and sign a form (called informed consent) to say you agree to join.

Study Length: 25 years

Number of appointments: 0 visits

More information on the trial can be found on the PD Frontline website.

This study will allow people to be referred into a clinical trial we are running called “Ambroxol to Slow Progression in Parkinson’s” (ASPro-PD).

a man with a blue check shirt and short blonde hair
NDN Principal Investigator : Dr David Breen
a woman in a pink shirt with medium length brown hair
NDN Study Lead: Jessica Crossan

To find out more about this research study, please contact:
loth.sdcrn@nhs.scot
0131 537 3804

Global Parkinson's Genetics Program Logo
the cure parkinson's logo
UCL Logo
Parkinson's UK logo

CONTACT INFORMATION

Neuroprogressive & Dementia Research Network Office

Old Pharmacy Building
Western General Hospital
Edinburgh
EH4 2XU

Email: loth.sdcrn@nhs.scot

Telephone: 0131 537 3804

ABOUT US

The NRS Neuroprogressive Disease and Dementia Network team in NHS Lothian conduct commercial and investigator led studies for: Alzheimer’s disease, Parkinson’s disease, Huntington’s disease, Motor Neurone Disease, dementia with Lewy bodies, Progressive Supranuclear Palsy and Multiple System Atrophy.

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