Partners in Research is the name of our PPI group.
Patient and public involvement (PPI) is about working with the public to plan, improve and share research.
Our main aim is to work together with people who live with neuroprogressive conditions, and with their loved ones. We also welcome members of the public and professionals, who have experience to share or an interest in the work the Neuroprogressive and Dementia Network do.
The group is funded by the Chief Scientist Office and is led by Dr Rosie Ashworth.
Our Partners in Research made a video about what it’s like being a part of the team!
We wrote a book!
“Challenging Assumptions Around Dementia
User-led Research and Untold Stories”
This offers an accessible resource to support more person-centred, collaborative research in dementia. This book is open access, which means that you have free and unlimited access
Read the book for free here.
Involving people with lived experience is essential to good research
If you would like to involve people with lived experience of neuroprogressive disease in your work, please complete this form.
We’d love you to get involved and help researchers develop their ideas!
If you’re someone with a neuroprogressive condition (multiple sclerosis, motor neuron disease, Huntington’s disease, Parkinson’s disease, or dementia), a family member or friend of someone with a condition, a carer, or a member of the public – your experience is really important in shaping research.
Learn more about getting involved in research here.
Do you want to help create and shape research?
If you are interested in shaping research – whether as someone living with a neuroprogressive condition, their family, a friend, a carer, or a member of the public – you can get involved and help researchers develop their ideas.
Watch our video on co-producing research for more information.
Professionals are welcome too!
If you would like to find out more, please contact TAY.ppipartners@nhs.scot .
