Patient and public involvement (PPI) is about working with the public to plan, improve and share research.
Partners in Research is the name of our PPI group.
The group is funded by the Chief Scientist Office and is led by Dr Rosie Ashworth.
Our main aim is to work together with people who live with neuroprogressive conditions, and with their loved ones. We also welcome members of the public and professionals, who have experience to share or an interest in the work the Neuroprogressive and Dementia Network do.
If you would like to find out more, please contact TAY.ppipartners@nhs.scot .
Our Partners in Research made a video about what it’s like being a part of the team!
Patient and public involvement does not involve taking part in a research study.
Want to sign up to take part in research? Click here.
Get involved
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If you’re interested in shaping research—whether as someone with a neuroprogressive condition (MS, MND, HD, Parkinson’s, or Dementia), a carer, or a member of the public—you can get involved and help researchers develop their ideas. Professionals are welcome too!
Find out more
If you would like to involve people with lived experience of neuroprogressive disease in your work, please complete the form below.
We wrote a book!
Find out more
- Offers an accessible resource to support more person-centred, collaborative research in dementia
- Presents co-produced dementia research between people with lived experience, academics and health care professionals
- This book is open access, which means that you have free and unlimited access
