The NDN and NHS Lothian Huntington’s service, are helping to identify people who may be interested in taking part in the iMarkHD study.

This research study is trying to better understand the changes in the brain that happen when a person has Huntington’s disease.

This study is based at King’s College London.

What Happens In This Study?

You will have two types of imaging scans; one called Positron Emission Tomography (PET) and another called Magnetic Resonance Imaging (MRI), as well as taking part in several physical and cognitive assessments, and blood tests.

Can I Join This Study?

To take part in this research study, you must also meet these 4 requirements:

1. Your Diagnosis: Both people with and without, either a diagnosis of HD OR carrying the HD gene mutation, can take part. 
2. Your Age: You are between 21 and 75 years old.
3. Your Permission: You must be able to understand what happens in the study and sign a form (called informed consent) to say you agree to join.
4. Your Time: This study is based at King’s College London. You must do your best to attend all your study visits, and follow the rules of the study until it ends.

Study Length: 3 years

Number of appointments: 10 visits

More information on the trial can be found by contacting us at loth.sdcrn@nhs.scot or by calling 0131 537 3804.