{"id":492,"date":"2022-12-07T11:14:21","date_gmt":"2022-12-07T11:14:21","guid":{"rendered":"https:\/\/services.nhslothian.scot\/parkinsonsservices\/living-with-parkinsons-disease\/"},"modified":"2022-12-07T15:44:19","modified_gmt":"2022-12-07T15:44:19","slug":"living-with-parkinsons-disease","status":"publish","type":"page","link":"https:\/\/services.nhslothian.scot\/parkinsonsservices\/living-with-parkinsons-disease\/","title":{"rendered":"Living with Parkinson\u2019s Disease"},"content":{"rendered":"<div class=\"wp-block-image\">\n<figure class=\"alignright size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-content\/uploads\/sites\/103\/2022\/12\/Pics-Parkinsons-UK-Logo_500px.jpg\" alt=\"Parkinson's UK: Change Attitudes. Find a cure. Join us\" class=\"wp-image-533\" width=\"375\" height=\"185\" srcset=\"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-content\/uploads\/sites\/103\/2022\/12\/Pics-Parkinsons-UK-Logo_500px.jpg 500w, https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-content\/uploads\/sites\/103\/2022\/12\/Pics-Parkinsons-UK-Logo_500px-300x148.jpg 300w\" sizes=\"auto, (max-width: 375px) 100vw, 375px\" \/><\/figure>\n<\/div>\n\n\n<p>Parkinson\u2019s disease not yet curable, and so there are thousands of people throughout the country living with it. Although their lives will change in some regards, many people with Parkinson\u2019s disease continue to remain physically and mentally very healthy.<\/p>\n\n\n\n<p>\u200bParkinson\u2019s UK is a UK-wide charity offering support to the people with Parkinons\u2019s disease, and their family or carers.<br>They have\u00a0<a rel=\"noreferrer noopener\" href=\"https:\/\/www.parkinsons.org.uk\/information-and-support\/newly-diagnosed-parkinsons\" target=\"_blank\">excellent information\u00a0for people who have recently been diagnosed with parkinson&#8217;s disease<\/a><\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Specialist Therapy and Rehabilitation<\/h2>\n\n\n\n<h3 class=\"wp-block-heading\">Edinburgh Parkinson&#8217;s Assessment Clinic<\/h3>\n\n\n\n<p>As well as our medical and nursing clinics, the Edinburgh Parkinson&#8217;s Assessment Clinic is held monthly at the Assessment and Rehabilitation Centre (ARC). The clinic offers those with a new diagnosis of Parkinson&#8217;s a thorough assessment and treatment plan.<\/p>\n\n\n\n<p>People attending this have the opportunity to see physiotherapists and occupational therapists, and we work closely with colleagues at the\u00a0Neurological Rehabilitation Service\u00a0and\u00a0<a rel=\"noreferrer noopener\" href=\"https:\/\/services.nhslothian.scot\/slt\" target=\"_blank\">Speech and Language Therapy<\/a><\/p>\n\n\n\n<p>Older people with more complex needs may be referred for a thorough assessment at one of the day hospitals across Lothian.<\/p>\n\n\n\n<p>The ways in which different therapies like physiotherapy can help is also explained on the&nbsp;<a href=\"https:\/\/www.parkinsons.org.uk\/information-and-support\/therapies\" target=\"_blank\" rel=\"noreferrer noopener\">Parkinson\u2019s UK<\/a>&nbsp;website.<\/p>\n\n\n\n<p>Our Specialist Parkinson\u2019s Disease nurses also provide a support and a contact for patients, either in clinic and advice for more urgent problems.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Medication<\/h3>\n\n\n\n<p>Often at the time of diagnosis, a person doesn\u2019t need medication. However, as time goes by their brain will make less dopamine it is likely they will need start new tablets to help replace this. These either have a similar effect to dopamine or work to increase the levels of dopamine in the brain.<\/p>\n\n\n\n<p>Three main types of medication are commonly used:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>levodopa \u2013 usually called co-careldopa (Sinemet) or co-beneldopa (Madopar)<\/li>\n\n\n\n<li>dopamine agonists \u2013 for example ropinirole, pramipexole or rotigotine<\/li>\n\n\n\n<li>monoamine oxidase-B inhibitors \u2013 called rasagiline or selegiline&nbsp;<\/li>\n<\/ul>\n\n\n\n<p>Exactly which medication would be best for you is something you can discuss with your doctor.<\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"alignright size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-content\/uploads\/sites\/103\/2022\/12\/NHSInformLogo.gif\" alt=\"NHS Inform Logo\" class=\"wp-image-516\" width=\"250\" height=\"91\"\/><\/figure>\n<\/div>\n\n\n<p>\u200b\u200bMore information about treatments can be found on\u00a0<a rel=\"noreferrer noopener\" href=\"https:\/\/www.nhsinform.scot\/illnesses-and-conditions\/brain-nerves-and-spinal-cord\/parkinsons-disease#treatment\" target=\"_blank\">NHS Inform<\/a>\u00a0and\u00a0<a rel=\"noreferrer noopener\" href=\"https:\/\/www.parkinsons.org.uk\/information-and-support\/drug-treatments\" target=\"_blank\">Parkinson\u2019s UK<\/a>, all of these are available for your doctor to use if it is thought they would work best for you.<\/p>\n\n\n\n<p>There are also other specialist treatments that can be considered for a small number of patients if other medications have failed and your doctor thinks it could help you. These include injections, pumps or brain surgery.<\/p>\n\n\n\n<p>Occasionally, newspapers report on new research and treatments for Parkinson\u2019s disease. It would usually be many years away before any treatment can be offered in clinic, and unfortunately a lot of medical research reported in newspapers does not live up to expectations.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Other Services<\/h3>\n\n\n\n<p>Here are some other services that may be helpful<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<ul class=\"wp-block-list\">\n<li><a rel=\"noreferrer noopener\" href=\"https:\/\/services.nhslothian.scot\/lcps\/\" target=\"_blank\">NHS Lothian Chronic Pain Services<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/services.nhslothian.scot\/StressControl\" target=\"_blank\" rel=\"noreferrer noopener\">Stress Control<\/a>\u00a0<\/li>\n<\/ul>\n<\/blockquote>\n\n\n\n<h3 class=\"wp-block-heading\">Finances and Driving<\/h3>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"alignright size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-content\/uploads\/sites\/103\/2022\/12\/Pics-Living-DVLA-Logo_400px.png\" alt=\"DVLA Logo\" class=\"wp-image-532\" width=\"200\" height=\"162\" srcset=\"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-content\/uploads\/sites\/103\/2022\/12\/Pics-Living-DVLA-Logo_400px.png 400w, https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-content\/uploads\/sites\/103\/2022\/12\/Pics-Living-DVLA-Logo_400px-300x242.png 300w\" sizes=\"auto, (max-width: 200px) 100vw, 200px\" \/><\/figure>\n<\/div>\n\n\n<p>Many people continue to work and live normal lives after their diagnosis with Parkinson\u2019s disease. However, you may need help with this and information on sick pay and\u00a0<a rel=\"noreferrer noopener\" href=\"https:\/\/www.nhsinform.scot\/illnesses-and-conditions\/brain-nerves-and-spinal-cord\/parkinsons-disease#living-with\" target=\"_blank\">different allowances are listed here<\/a>.<\/p>\n\n\n\n<p>\u200bIf you are suspected of having Parkinson\u2019s disease and you hold a driving license, you are required to inform the DVLA and your insurance of this. You won\u2019t necessarily have to stop driving, but you will have to provide more information about your condition. There is\u00a0<a rel=\"noreferrer noopener\" href=\"https:\/\/www.gov.uk\/driving-medical-conditions\" target=\"_blank\">more information from the DVLA<\/a>, and, and you can inform of a medical condition online.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Support Groups and Activities<\/h3>\n\n\n\n<p>The&nbsp;<a href=\"https:\/\/www.edinburghparkinsons.org\/\" target=\"_blank\" rel=\"noreferrer noopener\">Edinburgh branch of Parkinson\u2019s UK<\/a>&nbsp;is very active host and number of regular activities and specialist events. These are for people with Parkinson\u2019s disease, their family, carers or friends.<\/p>\n\n\n\n<ul class=\"wp-block-list\"><\/ul>\n\n\n\n<p>Parkinson\u2019s UK also has a very strong online community and&nbsp;<a href=\"https:\/\/forum.parkinsons.org.uk\/\" target=\"_blank\" rel=\"noreferrer noopener\">forum<\/a>&nbsp;where you can take part in online discussions and seek answers to questions<\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"310\" height=\"27\" src=\"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-content\/uploads\/sites\/103\/2022\/12\/Pics-PDUK_Forum.png\" alt=\"Parkinson's UK: Forum\" class=\"wp-image-531\" srcset=\"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-content\/uploads\/sites\/103\/2022\/12\/Pics-PDUK_Forum.png 310w, https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-content\/uploads\/sites\/103\/2022\/12\/Pics-PDUK_Forum-300x26.png 300w\" sizes=\"auto, (max-width: 310px) 100vw, 310px\" \/><\/figure>\n<\/div>\n\n\n<p>Another charity that runs events around the UK is the&nbsp;<a href=\"https:\/\/www.cureparkinsons.org.uk\/\" target=\"_blank\" rel=\"noreferrer noopener\">Cure Parkinson&#8217;s Trust<\/a>.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Using Technology<\/h3>\n\n\n\n<p>Parkinson&#8217;s UK also has exciting information on the use of <a href=\"https:\/\/www.parkinsons.org.uk\/information-and-support\/apps-and-devices-parkinsons\" target=\"_blank\" rel=\"noreferrer noopener\">Apps and devices for Parkinson&#8217;s<\/a><br>These can help people with their medications, and symptom control, and everything included has been reviewed and selected by those living with Parkinson&#8217;s.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">New Developments<\/h3>\n\n\n\n<p>If you are interested in hearing about new developments or discussions around aspects of Parkinson&#8217;s Disease, the\u00a0<a href=\"https:\/\/www.worldpdcongress.org\" target=\"_blank\" rel=\"noreferrer noopener\">World Parkinson&#8217;s Congress<\/a>\u00a0(WPC) publishes a regular and very informed blog on a wide range of topics.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Parkinson&rsquo;s disease not yet curable, and so there are thousands of people throughout the country living with it. Although their lives will change in some regards, many people with Parkinson&rsquo;s disease continue to remain physically and mentally very healthy. &#8203;Parkinson&rsquo;s UK is a UK-wide charity offering support to the people with Parkinons&rsquo;s disease, and their<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":3,"comment_status":"closed","ping_status":"closed","template":"page-templates\/widewidth.php","meta":{"footnotes":""},"categories":[],"class_list":["post-492","page","type-page","status-publish","hentry"],"rttpg_featured_image_url":null,"rttpg_author":{"display_name":"NHS Lothian","author_link":"https:\/\/services.nhslothian.scot\/parkinsonsservices\/author\/nhs-lothian\/"},"rttpg_comment":0,"rttpg_category":false,"rttpg_excerpt":"Parkinson&rsquo;s disease not yet curable, and so there are thousands of people throughout the country living with it. Although their lives will change in some regards, many people with Parkinson&rsquo;s disease continue to remain physically and mentally very healthy. &#8203;Parkinson&rsquo;s UK is a UK-wide charity offering support to the people with Parkinons&rsquo;s disease, and their","_links":{"self":[{"href":"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-json\/wp\/v2\/pages\/492","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-json\/wp\/v2\/comments?post=492"}],"version-history":[{"count":3,"href":"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-json\/wp\/v2\/pages\/492\/revisions"}],"predecessor-version":[{"id":536,"href":"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-json\/wp\/v2\/pages\/492\/revisions\/536"}],"wp:attachment":[{"href":"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-json\/wp\/v2\/media?parent=492"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/services.nhslothian.scot\/parkinsonsservices\/wp-json\/wp\/v2\/categories?post=492"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}