{"id":1745,"date":"2026-03-12T10:46:00","date_gmt":"2026-03-12T10:46:00","guid":{"rendered":"https:\/\/services.nhslothian.scot\/neuroprogressiveanddementianetwork\/?page_id=1745"},"modified":"2026-03-12T11:40:44","modified_gmt":"2026-03-12T11:40:44","slug":"pd-frontline","status":"publish","type":"page","link":"https:\/\/services.nhslothian.scot\/neuroprogressiveanddementianetwork\/pd-frontline\/","title":{"rendered":"PD Frontline"},"content":{"rendered":"\n
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PD Frontline (part of RAPSODI)<\/h1>\n\n\n\n

RAPSODI GD (Remote assessment of Parkinsonism supporting ongoing development of interventions in Gaucher disease)<\/h3>\n<\/div><\/div><\/div><\/div><\/div>\n\n\n\n
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\"PD<\/figure>
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Project Details<\/strong><\/p>\n\n\n\n

Start Date
November 2020<\/strong><\/p>\n\n\n\n

Status
Open to Recruitment<\/strong><\/p>\n\n\n\n

Principal Investigator
Dr David Breen<\/a><\/p>\n\n\n\n

NDN Study Lead
Jessica Crossan<\/a><\/p>\n\n\n\n

Main Research Site
Western General Hospital<\/strong><\/p>\n<\/div><\/div>\n\n\n\n

PD Frontline is a remote study that offers online genetic testing for individuals with Parkinson\u2019s disease<\/strong>, allowing them to be referred to relevant clinical trials and research studies if they wish.<\/p>\n\n\n\n

What Happens In This Study?<\/strong><\/p>\n\n\n\n

PD Frontline will send you a sample collection kit to provide blood and saliva samples. You will return these by post using a provided prepaid envelope. Your samples will be used for genetic testing, including the analysis of the GBA1 gene.<\/p>\n\n\n\n

Can I Join This Study?<\/strong><\/p>\n\n\n\n

To take part in this research study, you must also meet these 3 requirements<\/strong>:<\/p>\n\n\n\n

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  1. Your Diagnosis:<\/strong> A doctor must have confirmed that you have Parkinson\u2019s disease<\/strong>.<\/li>\n\n\n\n
  2. Your Age:<\/strong> You are between 18 and 90 years old<\/strong>.<\/li>\n\n\n\n
  3. Your Permission:<\/strong> You must be able to understand what happens in the study and sign a form (called informed consent<\/strong>) to say you agree to join.<\/li>\n<\/ol>\n\n\n\n

    Study Length<\/strong>: 25 years<\/p>\n\n\n\n

    Number of appointments<\/strong>: 0 visits<\/p>\n\n\n\n

    More information on the trial can be found on the PD Frontline <\/a>website.<\/p>\n\n\n\n

    This study will allow people to be referred into a clinical trial we are running called \u201cAmbroxol to Slow Progression in Parkinson\u2019s\u201d (ASPro-PD)<\/a>.<\/strong><\/h4>\n<\/div><\/div>\n\n\n\n