A list of website links to organisations providing support to individuals with genetic conditions and their families:<\/p>\n\n\n\n
Antenatal Results and Choices (UK)<\/a> Contact a Family (UK)<\/a> Genetic Alliance (UK)<\/a> Restricted Growth Association (UK)<\/a> Unique: Rare Chromosome Disorder Support Group (UK)<\/a> Alstrom Syndrome UK<\/a> Cardiomyopthy Association (UK)<\/a> Down’s Syndrome Association (UK)<\/a> Down’s Syndrome Scotland<\/a> Gauchers Association (UK)<\/a> Huntington’s Disease Association (UK)<\/a> Scottish Huntington’s Association<\/a> The Marfan Trust<\/a> Muscular Dystrophy UK<\/a> Polyposis Registry (UK)<\/a> Prader-Willi Syndrome Association (UK)<\/a> S.O.F.T UK<\/a> Stickler Syndrome Support Group (UK)<\/a>
Antenatal Results and Choices provides non-directive support and information to parents throughout the antenatal testing process.<\/p>\n\n\n\n
Contact a Family provides support and advice to parents of children born or diagnosed with a serious disability or rare syndrome.<\/p>\n\n\n\n
Genetic Alliance UK provides information for patients and families.<\/p>\n\n\n\n
The Restricted Growth Association provides information and support for people with restricted growth.<\/p>\n\n\n\n
Unique is a source of information, mutual support and self-help to families of children with any rare chromosome disorders.<\/p>\n\n\n\n
The Alstrom Syndrome UK provide support to people with this very rare, hereditary disorder and their carers.<\/p>\n\n\n\n
The Cardiomyopthy Association provides information on the main forms of the heart muscle disease known as Cardiomyopathy.<\/p>\n\n\n\n
The Down’s Syndrome Association provide information, counselling and support for people with Down’s syndrome, their families and carers.<\/p>\n\n\n\n
Down’s Syndrome Scotland is a membership organisation to support people with Down’s Syndrome in Scotland and their families.<\/p>\n\n\n\n
The Gauchers Association aims to keep families with this inherited, enzyme deficiency, disorder in touch for support.<\/p>\n\n\n\n
The Huntington’s Disease Association exists to support people affected by the disease and to provided information and advice to professionals whose task it is to support Huntington’s disease families.<\/p>\n\n\n\n
The Scottish Huntington’s Association provides information and support to those affected by this hereditary disorder.<\/p>\n\n\n\n
Marfan Association UK provides information and support to people with this genetic disorder of the connective tissue.<\/p>\n\n\n\n
The Muscular Dystrophy Campaign is the only UK charity focusing on all muscular dystrophies and allied disorders.<\/p>\n\n\n\n
The Polyposis Registry provides information about Familial Adenomatous Polyposis, an inherited condition which mainly affects the large intestine.<\/p>\n\n\n\n
The Prader-Willi Syndrome Association (UK) supports people and families affected by this chromosomal disorder.<\/p>\n\n\n\n
S.O.F.T UK provide support to families affected by Edward’s Syndrome, Patau’s Syndrome and related disorders.<\/p>\n\n\n\n
The Stickler Syndrome Support Group provides support to people with this genetic progressive condition.<\/p>\n\n\n\n