{"id":3,"date":"2021-04-08T14:31:10","date_gmt":"2021-04-08T13:31:10","guid":{"rendered":"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/?page_id=3"},"modified":"2022-05-30T10:52:43","modified_gmt":"2022-05-30T09:52:43","slug":"home","status":"publish","type":"page","link":"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/","title":{"rendered":"Cystic Fibrosis Adult Service"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Cystic Fibrosis Centres in Scotland<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">The East Regional Adult Cystic Fibrosis Service at the Western General Hospital in Edinburgh is one of three centres in Scotland caring for adults with Cystic Fibrosis (CF) &#8211; the others based at Queen Elizabeth Hospital in Glasgow and Aberdeen Royal Infirmary. The Edinburgh center provides outreach services to Ninewells Hospital in Dundee and Raigmore Hospital in Inverness.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The Edinburgh CF Adult Service is based within the Respiratory Services at the Western General Hospital providing a full range of care for adults with CF living in Lothian, Fife, Borders, Forth Valley, Highlands, Tayside &amp; Dumfries. It is based on Ward 54 in the Anne Ferguson Building (pictured) at the Western General Hospital. The majority of our patients are managed as outpatients and we run weekly multidisciplinary clinics. (This includes a weekly outreach clinic at Ninewells Hospital, Dundee).<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Between clinics, outpatients can access the team by day case attendance on Ward 54, arranged via our CF nurses. Ward 54 also features 11 single rooms with en-suite facilities for inpatient care.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">CF out-patient clinics are held in Edinburgh every Monday &amp; Wednesday and in Dundee on Thursdays. Clinics are carefully segregated on different days according to the organisms present on sputum culture, to minimise the risk of cross-infection between patients. For the same reason, the Service also operates individually segregated clinics, so that patients are always in separate rooms and never wait together in the outpatient or inpatient environment.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Aims of the Service<\/h3>\n\n\n\n<ul class=\"wp-block-list\">\n<li>To provide specialist care and promote all aspects of health and well being in young people and adults with CF.<\/li>\n\n\n\n<li>To offer support to young people and adults with CF and their families.<\/li>\n\n\n\n<li>To help patients and their families cope with the impact that CF has on their quality of life.<\/li>\n\n\n\n<li>To provide easy access to all members of the CF team as required.<\/li>\n<\/ul>\n\n\n\n<h3 class=\"wp-block-heading\">Our Philosophy&nbsp;<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Our philosophy is to provide patients with the best possible quality of life in a friendly, caring and supportive atmosphere ensuring patients receive expert care, advice and information.<\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full\"><div class=\"wpcp-wp-lightbox-host wpcp-advanced-image-lightbox-icon-hover\"><a class=\"wpcp-wp-lightbox-image-link\" href=\"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/wp-content\/uploads\/sites\/42\/2022\/05\/AnneFerguson.jpg\" data-wpcp-wp-lb-image=\"1\"><img loading=\"lazy\" decoding=\"async\" width=\"416\" height=\"203\" src=\"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/wp-content\/uploads\/sites\/42\/2022\/05\/AnneFerguson.jpg\" alt=\"Photo of the Anne Ferguson building at the Western General Hospital, Edinburgh\" class=\"wp-image-348\" srcset=\"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/wp-content\/uploads\/sites\/42\/2022\/05\/AnneFerguson.jpg 416w, https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/wp-content\/uploads\/sites\/42\/2022\/05\/AnneFerguson-300x146.jpg 300w\" sizes=\"auto, (max-width: 416px) 100vw, 416px\" \/><\/a><figcaption class=\"wp-element-caption\"><strong>East Regional Adult Cystic Fibrosis Service, Ward 54,<\/strong><br><strong>Anne Ferguson Building, Western General Hospital, Edinburgh, EH4 2XU<\/strong><\/figcaption><a href=\"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/wp-content\/uploads\/sites\/42\/2022\/05\/AnneFerguson.jpg\" data-fancybox=\"wpcp-wp-img-348\" class=\"wpcp-lightbox-trigger wpcp-advanced-image-lightbox-icon wpcp-position-top-right wpcp-advanced-image-lightbox-icon-hover wpcp-global-lightbox-icon wpcp-lightbox-icon--global wpcp-lb-icon-style-default\" data-wpcp-lb-icon-source=\"global\" aria-label=\"Open image in lightbox\" data-thumb-src=\"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/wp-content\/uploads\/sites\/42\/2022\/05\/AnneFerguson-300x146.jpg\" data-wpcp-lb-single=\"1\"><span class=\"wpcp-icon-container\"><svg viewBox=\"0 0 20 20\"><path d=\"M17.6585 16.025L14.2437 12.6198C15.1716 11.3338 15.6121 9.7613 15.4871 8.1819C15.362 6.60251 14.6795 5.11847 13.5607 3.99351C12.936 3.36206 12.1916 2.86066 11.3709 2.51845C10.5502 2.17623 9.66952 2 8.77995 2C7.89039 2 7.00969 2.17623 6.18899 2.51845C5.36829 2.86066 4.62395 3.36206 3.99919 3.99351C3.36594 4.61649 2.86312 5.35871 2.51992 6.17708C2.17673 6.99545 2 7.87365 2 8.76068C2 9.64772 2.17673 10.5259 2.51992 11.3443C2.86312 12.1627 3.36594 12.9049 3.99919 13.5279C5.11957 14.6901 6.62279 15.4103 8.23285 15.5562C9.84291 15.7022 11.4517 15.2641 12.7639 14.3224L16.1788 17.7275C16.3849 17.9034 16.6473 18 16.9186 18C17.1899 18 17.4523 17.9034 17.6585 17.7275C18.1138 17.16 18.1138 16.5925 17.6585 16.025ZM5.59278 12.0523C5.16258 11.6298 4.82094 11.1263 4.58774 10.5709C4.35455 10.0156 4.23446 9.41951 4.23446 8.81744C4.23446 8.21536 4.35455 7.6193 4.58774 7.06394C4.82094 6.50859 5.16258 6.00503 5.59278 5.58257C6.01644 5.15359 6.52144 4.81292 7.07838 4.58039C7.63532 4.34786 8.23308 4.22811 8.83687 4.22811C9.44066 4.22811 10.0384 4.34786 10.5954 4.58039C11.1523 4.81292 11.6573 5.15359 12.081 5.58257C12.5112 6.00503 12.8528 6.50859 13.086 7.06394C13.3192 7.6193 13.4393 8.21536 13.4393 8.81744C13.4393 9.41951 13.3192 10.0156 13.086 10.5709C12.8528 11.1263 12.5112 11.6298 12.081 12.0523C11.6573 12.4813 11.1523 12.822 10.5954 13.0545C10.0384 13.287 9.44066 13.4068 8.83687 13.4068C8.23308 13.4068 7.63532 13.287 7.07838 13.0545C6.52144 12.822 6.01644 12.4813 5.59278 12.0523Z\" \/><\/svg><\/span><\/a><\/div><\/figure>\n<\/div>\n\n\n<h3 class=\"wp-block-heading\">History of the Cystic Fibrosis Service<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Our CF service was developed in 1992 by Professor Andy Greening and Dr Sandy Raeburn who were fortunate enough to obtain support from the Cystic Fibrosis Trust and developed the service with one CF liaison sister and one CF clinical fellow. They were able to persuade the Scottish Office that the growing population of adults with CF had complex care needs which were best served by expert centres with specific funding, and got the go-ahead to set up the Scottish Adult Cystic Fibrosis Service, funded by National Services Division of NHS Scotland.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">In 1992 we had 55 patients attending the Edinburgh adult CF service and over time we evolved an outreach service to serve additional patients in Dundee. This number has increased on a yearly basis, reaching 260 in 2024 plus another&nbsp;60 reviewed at outreach clinic&nbsp;in Dundee. Our adult service is a truly National Service, since there are patients from all four corners of Scotland. Some attend the clinic in Edinburgh and others attend clinics in Inverness, Dumfries and Dundee.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Cystic Fibrosis Centres in Scotland The East Regional Adult Cystic Fibrosis Service at the Western General Hospital in Edinburgh is one of three centres in Scotland caring for adults with Cystic Fibrosis (CF) &ndash; the others based at Queen Elizabeth Hospital in Glasgow and Aberdeen Royal Infirmary. The Edinburgh center provides outreach services to Ninewells<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"page-templates\/fullwidth.php","meta":{"_gspb_post_css":"","footnotes":""},"categories":[],"class_list":["post-3","page","type-page","status-publish","hentry"],"rttpg_featured_image_url":null,"rttpg_author":{"display_name":"","author_link":"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/author\/"},"rttpg_comment":0,"rttpg_category":false,"rttpg_excerpt":"Cystic Fibrosis Centres in Scotland The East Regional Adult Cystic Fibrosis Service at the Western General Hospital in Edinburgh is one of three centres in Scotland caring for adults with Cystic Fibrosis (CF) &ndash; the others based at Queen Elizabeth Hospital in Glasgow and Aberdeen Royal Infirmary. The Edinburgh center provides outreach services to Ninewells","_links":{"self":[{"href":"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/wp-json\/wp\/v2\/pages\/3","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/wp-json\/wp\/v2\/comments?post=3"}],"version-history":[{"count":8,"href":"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/wp-json\/wp\/v2\/pages\/3\/revisions"}],"predecessor-version":[{"id":576,"href":"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/wp-json\/wp\/v2\/pages\/3\/revisions\/576"}],"wp:attachment":[{"href":"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/wp-json\/wp\/v2\/media?parent=3"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/services.nhslothian.scot\/cysticfibrosisadultservice\/wp-json\/wp\/v2\/categories?post=3"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}